IRYMPLE parents Bianca and Dan Coghlan have launched Australia's first charity to support families with Dravet Syndrome.

The couple's three-year-old daughter Skyler was diagnosed with the rare, lifelong form of epilepsy at six months of age, and is the only child with the affliction in Sunraysia.

Skyler's endured more than 400 seizures, 100 ambulance callouts, 50 emergency department visits and ...